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 Post subject: Lyme
PostPosted: Sun Aug 14, 2005 3:40 pm 
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Location: north eastern Calif.
On April 4 2004 I was scouting for a Pathfinder outing and discovered a small black tick on me the next morning. Life has not been the same since. Even though I have been on heavy antibiotics for more than a year. My ability to really concentrate is gone for months at a time. Intense fatigue is a major problem. Aches and pains appear from nowhere for about 3 days in a location and then move to a new location. Etc.

I request your continued prayers.
There are others in our church that have this disease that need your prayers too.
I know of 2 pastors,
an independent ministry leader,
a college biological outpost caretaker and his wife.
and several others that are members of SDALyme yahoogroup.

There is a string I started under camping tips.


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 Post subject:
PostPosted: Mon Aug 15, 2005 10:03 pm 
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Hey,
I'll be praying for you. I know someone who is really ill from this stupid disease!!! He's the son of our conference Pathfinder director. From what I hear, he's really sick! I don't know them personally, but what happens to him will really affect our whole conference. So I will pray for you and him both!
God Bless!!!

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Katie Lenz
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"Don't wait for the one you can live with, wait for the one you can't live without."


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 Post subject:
PostPosted: Tue Aug 16, 2005 7:40 pm 
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Location: Upper Columbia Conference!
:wink: I'll be praying for you too!!

Right Katie, Shawn has Lyme desease also! He was a student missionary in asia somewhere and the doctors thought it was some unknown disease. It was finnally figured out after much testing and a long period of unknown, that it was Lyme. He at least now knows what he is up against but he still needs our prayers!!

I'll be praying for you John. May God be your strengh in bouts with fatigue!! Please pray also for Shawn Hicks :!:

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 Post subject:
PostPosted: Wed Aug 17, 2005 7:19 pm 
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Location: Collegedale, TN
My prayers are with both Shawn and John. I hope you both will beat this as painlessly as possible.

Unfortunately, satan has a stranglehold on this earth, but let me let you in on a little secret. He's lost the war. Anything he tries, God flips over and uses it for his own good. I'm a Celiac (allergic to wheat) and have crohns disease (my intestines sometimes try to eat themselves) but I've pulled through, and now I can relate easier to people in similar situations. God can use experiences and difficulties like this to encourage others and spread His love. So let God take control and He'll show you where he wants you to go.

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 Post subject:
PostPosted: Thu Aug 18, 2005 6:42 pm 
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Wow, Rider1000. I'll be praying for you too!!! You must have overcome a lot to ride your bike all the time. This really sweet little boy in one of our church was just diagnosed with chrones. He's 7 and a super sweet kid. They thought it was ecoli at first, then they had no idea, and then they figured out it was chrones.

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Katie Lenz
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Once a Pathfinder, always a Pathfinder!

"Don't wait for the one you can live with, wait for the one you can't live without."


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 Post subject:
PostPosted: Fri Aug 19, 2005 12:49 pm 
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Katie, If that little boy needs any help or even just encouragement, let me know. I'd be glad to help him. I know what it's like, it's tough but it really gets better. You guys think it's worse than it is. I am really glad that I got diagnosed. I feel much better after treatment. I'm sure that's the way it is with Lyme disease, at least, I pray it is.

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“When you pass through the waters,
I will be with you;
and when you pass through the rivers,
they will not sweep over you.
When you walk through the fire,
you will not be burned;
the flames will not set you ablaze”
Isaiah 43:1-3


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 Post subject:
PostPosted: Fri Jan 20, 2006 8:50 pm 
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Location: Overland Park, KS
Keep up your courage. I know the pain and exhaustion it can cause. I had 3rd stage Lyme Disease for 2 years before it was officially diagnosed. "You can't have it because there is no Lyme Disease in Kansas." I praise God for an infectious disease specialist who believed me. After 15 days of IV Rocephin, my neurological symptoms gradually went away. The only residual I have is some numbness in my hand and easy fatigue.


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PostPosted: Thu Apr 06, 2006 1:02 am 
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After trying many things, including an attempt on hot water treatments (Sitting in 110F water for an hour is not easy). My doctor is recommending Hyperbaric Oxygen treatments. It is now 2 years from the tick bite and being unable to work. HBOT costs a lot. Loma Linda Med center charges $1500.00 for one treatment but there are places that offer treatments for much less than that. As you know, Pathfinder insurance covers for 1 year only. So the Lord will provide a way if this is His will.


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 Post subject: war with Lyme
PostPosted: Fri May 19, 2006 2:27 pm 
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Location: north eastern Calif.
The HBOT plans fell through.
So have started IV antibiotics at $100 a day.
Your Prayers are needed. The Lord will provide.

Please be carefull when in tick country.


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 Post subject:
PostPosted: Sun May 21, 2006 4:27 pm 
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I'm praying for you too!!!

Our Conference director's son, Sean, was just diagnosed with lyme disease on Friday morning...finally, after years of trying to get a doctor to diagnose it. He's been really sick. It was an answer to prayer to get diagnosed b/c that was half the battle for him.

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Katie Lenz
18
Once a Pathfinder, always a Pathfinder!

"Don't wait for the one you can live with, wait for the one you can't live without."


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 Post subject:
PostPosted: Thu Nov 23, 2006 12:29 pm 
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Location: Central New Hampshire
Hi John,

Can we get an update on your battle with Lyme's? I'm still praying for you.

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The sooner you get behind, the more time you have to catch up.


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 Post subject: My Lyme update
PostPosted: Fri Dec 15, 2006 9:30 am 
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I want to thank you for your prayers. God has been with me through this trial so far. It seems that God has put people around me that have gone or are going through Lyme disease too. Some have given up on getting over it because their IDSA doctor says there is nothing more that can be done and takes them off antibiotics, thus making antibiotic resistant Lyme bacteria.

Seeing what my father went through with cancer this is just about as bad, but this is more drawn out. He was down for about 6 months.

I have been on IV antibiotics for more than 6 months now and am feeling much better. I still am very prone to fatigue. Fortunately my doctor found a way for me to get the IV antibiotics at half price.

After 3 months of IV antibiotics the mental fog lifted, and after 6 months the pain dropped way back. At my last doctor visit it was recommended that I stop the IV antibiotics and go back to orals. I still need 10 to 14 hrs of sleep a day.

In the mean time I got married with my wife’s unit helping with the reception in Oregon and my club did the reception in California. To top it off we moved to a totally new place in the California out back (Susanville area). Where the Sierras, Cascades and Nevada desert meet.

To help fight Lyme disease sign a online petition
http://www.lymediseaseassociation.org/r ... n.php?id=1


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 Post subject:
PostPosted: Fri Dec 15, 2006 4:12 pm 
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Location: Central New Hampshire
Congratulations on your marriage, John! I will continue to pray for you, and I am very happy that you are doing better.

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Jim Thomas
The sooner you get behind, the more time you have to catch up.


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 Post subject:
PostPosted: Sun Dec 17, 2006 12:18 pm 
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Location: North American Division Pathfinder Ministries
John,

Susanville, though in California, is in the Nevada-Utah conference,. However, at least in the past, the leadership in the Northern California Conference have offered leadership training and support for the Susanville club because of their remote location to the population centers and support in N-U Conference. If you're in staff leadership this next year (of course based on your health!), Susanville Pathfinders leadership are invited to attend the NCC Staff Leadership convention the second weekend of September at Leoni Meadows Camp. Its a lot closer than the training offered by N-U Conf.

Mark O'Ffill

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 Post subject: Update
PostPosted: Sat Oct 06, 2007 6:46 pm 
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I still am on IV antibiotics for over a year now but when I went off them for a week I could not function at all.

My Doctor here wants me to see a different specialist.

My myalgia, arthritis, and fatigue still are bothering me a lot but I can think rather than being in a mental fog all the time.

Our new pastor sees the need for a Pathfinder club and I so much want to be part of it but as it is right now God will have to give the strength.


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 Post subject:
PostPosted: Mon Oct 08, 2007 7:48 pm 
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Location: Carolina Conference, Southern Union Conference, NAD
I am glad to see that you are still hanging in there. I praise God that you have recovered to some degree. I will continue to pray that God will be with you. I will also pray that you will continue to mend.

God Bless.

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 Post subject:
PostPosted: Thu Oct 18, 2007 7:10 pm 
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Location: collegedale, TN
I am so terribly sorry! I had Lyme's disease once. I got lucky i guess you could say in the fact that i haven't really had any lasting effects! So i can only sympathies on a tiny small level! I will defiantly keep you in my prayers!

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 Post subject: Re: Lyme
PostPosted: Sun May 11, 2008 6:20 pm 
I will pray for everybody with Lyme. It sounds painful.


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 Post subject: Re: Lyme
PostPosted: Wed May 14, 2008 9:18 pm 
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Location: Carolina Conference, Southern Union Conference, NAD
John-

How have things been progressing? I hope that they have been for the better. I am continuing to keep you in my prayers.

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 Post subject: Re: Lyme
PostPosted: Tue May 27, 2008 7:58 pm 
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Location: north eastern Calif.
I am off IV antibiotics and find that stinging nettle stings take away my pain.
I am well enough to try to direct the "Wilderness Survival" program at Camp Cedar Falls this summer.
Lyme will be a part of it.

KE6VUB


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 Post subject: Re: Lyme
PostPosted: Wed May 28, 2008 7:59 am 
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John,

I'm glad to hear such good news. And I think that the kids will appreciate much better learning from you about it.

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 Post subject: Re: Lyme
PostPosted: Mon Jun 02, 2008 2:34 pm 
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I'm glad to hear this good news! I hope that you continue to get better! oh, and by the way, I love your signature :wink:
KI4GKR

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 Post subject: Re: Lyme
PostPosted: Sat Sep 13, 2008 6:23 pm 
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Location: north eastern Calif.
I continued the stinging nettle treatment along with the antibiotics and other supplements and made it through camp. I taught 3 hrs a day and needed to nap most of the afternoon. Then did the web page update in the evening-night.
It seemed that something gave me the endurance that was not there before camp. It was like there was an army of prayer warriors praying for me.

Also

As Steps to Christ starts off:
Nature and revelation alike testify of God's love. Our Father in heaven is the source of life, of wisdom, and of joy. Look at the wonderful and beautiful things of nature. Think of their marvelous adaptation to the needs and happiness, not only of man, but of all living creatures. The sunshine and the rain, that gladden and refresh the earth, the hills and seas and plains, all speak to us of the Creator's love. It is God who supplies the daily needs of all His creatures. In the beautiful words of the psalmist--
"The eyes of all wait upon Thee;
And Thou givest them their meat in due season.
Thou openest Thine hand,
And satisfiest the desire of every living thing."
Psalm 145:15, 16.

(This passage is the keystone of my classes on wilderness survival or wild edible plants.)

Several of the Indian tribes used to sting themselves with nettles for arthritis and fibromyalgia type illnesses. So I tried one of the medicines God provided in nature and it has done wonders. The Devil gave us lyme but God made nature adapt to meet the challenge.


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 Post subject: Re: Lyme
PostPosted: Sun Sep 14, 2008 10:37 am 
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Location: Carolina Conference, Southern Union Conference, NAD
It is great to hear that you are continuing to get well. I have been praying that things would continue to improve. I will continue to pray for your continued improvement and praise the Lord that you have come this far.

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 Post subject: Re: Lyme
PostPosted: Sun Mar 27, 2011 8:51 am 
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Location: north eastern Calif.
I am continuing to get better slowly. I still crash for at least a day or 2 after a big day.
The nettle treatments I did in 2008 were the biggest pain relief I have ever had. The arthritis and fibromyalgia are gone after nettle urtication from April to December of 2008. But the fatigue hangs on and on.

:D Today (March 27, 2011) we will start a Pathfinder club at Susanville CA. We had enrollment a couple of weeks ago.


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